NH Council for Youths with Chronic Conditions is a parent-focused State council committed to being a voice for families of children with chronic health conditions. They educate and inform policy makers and stakeholders of the unique challenges and opportunities to expand that children and youth with chronic conditions have affordable access to care, supportive home and community environments, and that families have family-supportive work environments.
Promote timely, individualized needs assessments of children and adolescents with chronic health conditions and their families in language easily translated into actions.
Provide advocacy and promote family involvement at all levels of health care planning, policy making, advisory, and monitoring capacities.
Advocate and collaborate with public and private agencies and organizations that serve children and adolescents, in enhancing community-based family supports that meet the unique needs of children and adolescents with chronic health conditions and their families.
Increase awareness and visibility in the public and private sector of the medical, educational, social, psychological, and financial issues that impact children and adolescents with chronic health conditions and their families.
Facilitate family/physician collaboration at all levels of support and service delivery systems.
Empower families with children with chronic health conditions through educational opportunities and the dissemination of information that is understandable, accessible, complete, and presented in a manner that is compassionate and caring.
More information about this Difference Maker can be found at:
www.nhcycc.org
