The FamilieSCN2A Foundation is a non-profit started by parents of children with a rare genetic change in the SCN2A gene, which leads to epilepsy and/or autism. FamilieSCN2A works hard to provide support to the SCN2A community, funding research to better understand SCN2A-related disorders (SRDs) and to one day find cures for all SCN2A patients.
To accelerate research, build community and advocate to improve the lives of those affected by SCN2A-related disorders around the world.
- URGENCY – As parents themselves, they understand the daily suffering of all those affected by SCN2A so they aim, every day, to beat the clock and save the affected lives and improve their futures.
- INTEGRITY – They say what they believe and do what they say. In their personal, team, and organizational lives, they act with uncompromising honesty, honor, and truthfulness.
- COLLABORATION – They believe they are stronger together. They listen and evolve together for the sake of a collective goal.
- INCLUSION – They recognize, value, and effectively utilize the talents, skills, and perspectives of every teammate and every family they serve.
More information about this Difference Maker can be found at: www.scn2a.org/
